Experiences and preferences of patients visiting a head and neck oncology outpatient clinic: a qualitative study

Eur Arch Otorhinolaryngol. 2017 May;274(5):2245-2252. doi: 10.1007/s00405-017-4453-7. Epub 2017 Jan 28.

Abstract

The objective of this study is to report on an in-depth evaluation of patient experiences and preferences at a Head and Neck Oncology outpatient clinic. A qualitative research design was used to determine the experiences and preferences of Head and Neck Cancer patients in an Oncology Outpatient Clinic, Maastricht University Medical Center, The Netherlands. Head and Neck Cancer Patients, treated for at least 6 months at the Oncology Clinic, were included. A qualitative research design with patient interviews was used. All interviews were recorded and transcribed verbatim to increase validity. Analysis was done with use of the template approach and qualitative data analysis software. Three of the six dimensions predominated in the interview: (1) respect for patients' values, preferences and expressed need, (2) information, communication and education and (3) involvement of family and friends. The dimensions physical comfort; emotional support; coordination and integration of care were considered to be of less significance. The findings from this study resulted in a deeper understanding of patients' experiences and preferences and can be useful in the transition towards a more patient-centered approach of health care.

Keywords: Head and neck; Oncology; Patient preferences; Patient-centered care; Qualitative research.

MeSH terms

  • Aged
  • Ambulatory Care Facilities / statistics & numerical data
  • Female
  • Head and Neck Neoplasms / psychology*
  • Humans
  • Male
  • Middle Aged
  • Netherlands
  • Patient Outcome Assessment
  • Patient Preference* / psychology
  • Patient Preference* / statistics & numerical data
  • Patient-Centered Care* / methods
  • Patient-Centered Care* / standards
  • Postoperative Period
  • Qualitative Research
  • Quality Improvement