Long-term evaluation of fecal continence and quality of life in patients operated for anorectal malformations

Rev Assoc Med Bras (1992). 2016 Sep;62(6):544-552. doi: 10.1590/1806-9282.62.06.544.

Abstract

Introduction:: Patients operated for correction of anorectal malformations (ARM) can develop fecal incontinence, constipation, and soiling, with loss in quality of life.

Objective:: To evaluate, through the use of questionnaires, fecal continence, and quality of life of children in the late postoperative follow-up of ARM correction, both high and low. In addition, the levels of fecal continence and quality of life were compared with those of a control group.

Method:: A Fecal Continence Index Questionnaire (ICF) and a Questionnaire for Assessment of Quality of Life Related to Fecal Continence in Children and Adolescents (QQVCFCA) were administered to 63 patients with ARM, aged from 7 to 19 years, whose surgical treatment had been completed for at least 6 months. The patients were compared to a control group of 59 children.

Results:: In the control group, 25 (42.4%) patients had good continence and 34 (57.6%), normal continence. We found that the quality of life in children with ARM is compromised globally, in all areas and in the ICF questionnaire, compared to controls (p<0.001). There was no difference between patients with high and low defects. Thirty-two (50.8%) patients had other associated anomalies.

Conclusion:: In patients operated for ARM correction, quality of life and ICF were compromised, and there was no difference between patients with high-type and low-type of the disease. In about half the cases there are other associated malformations.

MeSH terms

  • Adolescent
  • Anorectal Malformations / complications
  • Anorectal Malformations / psychology
  • Anorectal Malformations / surgery*
  • Case-Control Studies
  • Child
  • Fecal Incontinence / etiology
  • Fecal Incontinence / psychology
  • Fecal Incontinence / surgery*
  • Female
  • Humans
  • Male
  • Quality of Life / psychology*
  • Surveys and Questionnaires
  • Time Factors
  • Young Adult