Self-Management Behaviors of Children With Spina Bifida

J Neurosci Nurs. 2017 Feb;49(1):15-21. doi: 10.1097/JNN.0000000000000223.

Abstract

Purpose: The aim of this study was to identify factors associated with self-management behaviors in children with spina bifida (SB). The Individual and Family Self-Management Theory was used as a framework.

Methods: This was a cross-sectional survey study of 112 elementary school children (7-12 years old) with SB who regularly attended scheduled follow-up appointments at the SB clinic of a children's hospital in Seoul, Korea, and their parents. Demographics, condition severity, school adjustment, and family function were the contextual self-management factors, whereas self-management knowledge, self-efficacy, and social support were the process factors.

Results: Age and condition severity were the contextual factors influencing self-management behaviors in children with SB; among the process factors, self-management knowledge and self-efficacy were statistically significant predictors.

Conclusion: To improve self-management behaviors in children with SB, it is necessary to develop intervention programs that reflect their age and condition severity as contextual factors and aim to enhance self-management knowledge and self-efficacy as process factors.

MeSH terms

  • Age Factors
  • Child
  • Cross-Sectional Studies
  • Disabled Children / psychology*
  • Female
  • Humans
  • Korea
  • Male
  • Parents / psychology
  • Self Care*
  • Self Efficacy*
  • Severity of Illness Index*
  • Social Support
  • Spinal Dysraphism / psychology*