Parental involvement in the care and intervention of children with hearing loss

Int J Audiol. 2018 May;57(sup2):S15-S26. doi: 10.1080/14992027.2016.1220679. Epub 2016 Sep 6.

Abstract

Objective: The present study aimed to explore the nature of parental involvement in the intervention of children with hearing loss, as experienced by parents.

Design: A qualitative descriptive methodology was adopted to conduct semi-structured in-depth interviews with a purposive sample of parents who have a child with hearing loss.

Study sample: Seventeen parents of 11 children aged 6-9 years participated in this study.

Results: The overarching theme of parents taking the central role was identified using thematic analysis. This overarching theme connected five themes which described the nature of parental involvement: (1) parents work behind the scenes; (2) parents act as 'case managers'; (3) parents always have their child's language development in mind; (4) parents' role extends to advocacy for all children with hearing loss; and (5) parents serve a number of roles, but at the end of the day, they are parents.

Conclusions: The results indicate that parental involvement in the intervention of children with hearing loss is multifaceted in nature and incorporates a broad range of behaviours and practices. These findings have important implications for the provision of family-centred practices.

Keywords: Children; family-centred practice; hearing loss; intervention; parental involvement.

Publication types

  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Age Factors
  • Auditory Perception*
  • Australia
  • Caregivers / psychology*
  • Child
  • Child Advocacy
  • Child Behavior
  • Child Language
  • Cochlear Implants
  • Correction of Hearing Impairment / instrumentation
  • Correction of Hearing Impairment / methods*
  • Disabled Children / psychology
  • Disabled Children / rehabilitation*
  • Female
  • Hearing Aids
  • Hearing Loss / diagnosis
  • Hearing Loss / physiopathology
  • Hearing Loss / psychology
  • Hearing Loss / rehabilitation*
  • Hearing*
  • Humans
  • Interviews as Topic
  • Longitudinal Studies
  • Male
  • Parenting / psychology
  • Parents / psychology*
  • Patient Advocacy
  • Persons With Hearing Impairments / psychology
  • Persons With Hearing Impairments / rehabilitation*
  • Qualitative Research