Les grandes bases de données nationales et les études dans la vraie vie : l'exemple des sarcomes en France

Abstract

EXAMPLE OF SARCOMAS IN FRANCE: Sarcomas are rare and heterogeneous tumours, and improvement of knowledge and of patient management need to gather and share data and biological material. The French sarcoma database stores in a warehouse clinical, pathological, molecular, therapeutic and follow-up data as well as data on samples and medical practices. This database and the national structured networks constitute major tools for the French Sarcoma Group.

Keywords: Base de données; Database; Evaluation of medical practices; Sarcoma; Sarcomes; Évaluation des pratiques médicales.