The significant impact of education, poverty, and race on Internet-based research participant engagement

Genet Med. 2017 Feb;19(2):240-243. doi: 10.1038/gim.2016.91. Epub 2016 Jul 28.

Abstract

Purpose: Internet-based technologies are increasingly being used for research studies. However, it is not known whether Internet-based approaches will effectively engage participants from diverse racial and socioeconomic backgrounds.

Methods: A total of 967 participants were recruited and offered genetic ancestry results. We evaluated viewing Internet-based genetic ancestry results among participants who expressed high interest in obtaining the results.

Results: Of the participants, 64% stated that they were very or extremely interested in their genetic ancestry results. Among interested participants, individuals with a high school diploma (n = 473) viewed their results 19% of the time relative to 4% of the 145 participants without a diploma (P < 0.0001). Similarly, 22% of participants with household income above the federal poverty level (n = 286) viewed their results relative to 10% of the 314 participants living below the federal poverty level (P < 0.0001). Among interested participants both with a high school degree and living above the poverty level, self-identified Caucasians were more likely to view results than self-identified African Americans (P < 0.0001), and females were more likely to view results than males (P = 0.0007).

Conclusion: In an underserved population, engagement in Internet-based research was low despite high reported interest. This suggests that explicit strategies should be developed to increase diversity in Internet-based research.Genet Med 19 2, 240-243.

MeSH terms

  • Adult
  • Black or African American
  • Female
  • Genetics*
  • Humans
  • Internet / trends*
  • Male
  • Poverty
  • Racial Groups
  • Research / trends*
  • Surveys and Questionnaires*
  • White People