A scoping review of the literature on benefits and challenges of participating in patient education programs aimed at promoting self-management for people living with chronic illness

Una Stenberg; Mette Haaland-Øverby; Kari Fredriksen; Karl Fredrik Westermann; Toril Kvisvik

doi:10.1016/j.pec.2016.07.027

A scoping review of the literature on benefits and challenges of participating in patient education programs aimed at promoting self-management for people living with chronic illness

Patient Educ Couns. 2016 Nov;99(11):1759-1771. doi: 10.1016/j.pec.2016.07.027. Epub 2016 Jul 18.

Authors

Una Stenberg¹, Mette Haaland-Øverby², Kari Fredriksen³, Karl Fredrik Westermann⁴, Toril Kvisvik⁵

Affiliations

¹ Norwegian National Advisory Unit on Learning and Mastery in Health, Oslo University Hospital, Postboks 4959 Nydalen, 0424 Oslo, Norway; Center for Shared Decision Making and Collaborative Care Research, Oslo University Hospital, Postboks 4959 Nydalen, 0424 Oslo, Norway. Electronic address: una.stenberg@mestring.no.
² Norwegian National Advisory Unit on Learning and Mastery in Health, Oslo University Hospital, Postboks 4959 Nydalen, 0424 Oslo, Norway. Electronic address: mette.haaland-overby@gmail.com.
³ Learning and Mastery Center, Stavanger University Hospital, Postboks 8100, 4068 Stavanger, Norway. Electronic address: kari.fredriksen@sus.no.
⁴ Norwegian National Advisory Unit on Learning and Mastery in Health, Oslo University Hospital, Postboks 4959 Nydalen, 0424 Oslo, Norway. Electronic address: karl.fredrik.westermann@gmail.com.
⁵ Patient Education Resource Center, Møre and Romsdal Hospital, Herman Døhlens vei 1, 6508 Kristiansund, Norway. Electronic address: toril.kvisvik@helse-mr.no.

PMID: 27461944
DOI: 10.1016/j.pec.2016.07.027

Abstract

Objective: To give a comprehensive overview of benefits and challenges from participating in group based patient education programs that are carried out by health care professionals and lay participants, aimed at promoting self-management for people living with chronic illness.

Methods: We searched 8 literature databases. Full text articles meeting the inclusion criteria were retrieved and reviewed. Arksey and O'Malley's framework for scoping studies guided the review process and thematic analysis was undertaken to synthesize extracted data.

Results: Of the 5935 titles identified, 47 articles were included in this review. The participants experienced the programs as beneficial according to less symptom distress and greater awareness of their own health, improved self-management strategies, peer support, learning and hope.

Conclusion: A substantial evidence base supports the conclusion that group based self-management patient education programs in different ways have been experienced as beneficial, but more research is needed.

Practice implications: The insights gained from this review can enable researchers, health care professionals, and participants to understand the complexity in evaluating self-management patient education programs, and constitute a basis for a more standardized and systematic evaluation. The results may also encourage health care professionals in planning and carrying out programs in cooperation with lay participants.

Keywords: Chronic disease; Disease management; Patient education; Patient participation; Self efficacy.

Publication types

Review
Research Support, Non-U.S. Gov't

MeSH terms

Chronic Disease / therapy*
Health Literacy
Humans
Patient Education as Topic / methods*
Patient Participation
Program Evaluation
Self Care / methods*
Self Efficacy*