To share or not to share is the question

Donald R C Chalmers; Dianne Nicol; Margaret F Otlowski

doi:10.1016/j.atg.2014.09.011

To share or not to share is the question

Appl Transl Genom. 2014 Sep 18;3(4):116-9. doi: 10.1016/j.atg.2014.09.011. eCollection 2014 Dec 1.

Authors

Donald R C Chalmers¹, Dianne Nicol¹, Margaret F Otlowski¹

Affiliation

¹ Centre for Law and Genetics, University of Tasmania, Private Bag 89, Hobart, TAS 7001, Australia.

Abstract

Data sharing is increasingly becoming an essential component of clinical practice and biomedical research. The debate has shifted from whether or not to exchange data to how best to achieve optimal sharing. This raises new ethical and legal challenges, particularly with regard to consent and privacy. This article discusses recent developments in the formulation of best practice guidelines for data sharing. Particular attention is focused on the Global Alliance for Genomics and Health (GA4GH) draft Framework of Conduct for Data Sharing.

Keywords: Data sharing; Personalised medicine; Privacy.

Publication types

Review