Low quality of life and psychological wellbeing contrast with moderate perceived burden in carers of people with severe multiple sclerosis

Andrea Giordano; Vincenzo Cimino; Angela Campanella; Giovanni Morone; Augusto Fusco; Mariangela Farinotti; Lucia Palmisano; Paolo Confalonieri; Alessandra Lugaresi; Maria Grazia Grasso; Michela Ponzio; Simone Veronese; Francesco Patti; Alessandra Solari; PeNSAMI project

doi:10.1016/j.jns.2016.05.016

Low quality of life and psychological wellbeing contrast with moderate perceived burden in carers of people with severe multiple sclerosis

J Neurol Sci. 2016 Jul 15:366:139-145. doi: 10.1016/j.jns.2016.05.016. Epub 2016 May 12.

Authors

Affiliations

¹ Unit of Neuroepidemiology, Foundation IRCCS Neurological Institute C. Besta, via Celoria 11, 20133 Milan, Italy. Electronic address: andrea.giordano@istituto-besta.it.
² MS Centre, Neurology Clinic, University Hospital Policlinico Vittorio Emanuele, via S. Sofia, 78, 95123 Catania, Italy. Electronic address: nzinoci@inwind.it.
³ Scientific Direction, Foundation IRCCS Neurological Institute C. Besta, via Celoria 11, 20133 Milan, Italy. Electronic address: angela.campanella@istituto-besta.it.
⁴ Multiple Sclerosis Unit, IRCCS S. Lucia Foundation, Via Ardeatina 306, 00142 Rome, Italy. Electronic address: g.morone@hsantalucia.it.
⁵ Multiple Sclerosis Unit, IRCCS S. Lucia Foundation, Via Ardeatina 306, 00142 Rome, Italy. Electronic address: a.fusco@hsantalucia.it.
⁶ Unit of Neuroepidemiology, Foundation IRCCS Neurological Institute C. Besta, via Celoria 11, 20133 Milan, Italy. Electronic address: mariangela.farinotti@istituto-besta.it.
⁷ Department of Therapeutic Research and Medicine Evaluation, Istituto Superiore di Sanità, Viale Regina Elena 299, 00161 Rome, Italy. Electronic address: lucia.palmisano@iss.it.
⁸ Unit of Neuroimmunology, and Neuromuscular Diseases, Foundation IRCCS Neurological Institute C. Besta, via Celoria 11, 20133 Milan, Italy. Electronic address: paolo.confalonieri@istituto-besta.it.
⁹ Department of Neuroscience, Imaging and Clinical Sciences, G. d'Annunzio University of Chieti-Pescara, Via dei Vestini 31, 66013 Chieti, Italy. Electronic address: lugaresi@unich.it.
¹⁰ Multiple Sclerosis Unit, IRCCS S. Lucia Foundation, Via Ardeatina 306, 00142 Rome, Italy. Electronic address: mg.grasso@hsantalucia.it.
¹¹ Department of Research, Fondazione Italiana Sclerosi Multipla (FISM), Via Operai 40, 16149 Genoa, Italy. Electronic address: michela.ponzio@aism.it.
¹² FARO Charitable Foundation, Via Oddino Morgari 12, 10125 Turin, Italy. Electronic address: simone.veronese@fondazionefaro.it.
¹³ MS Centre, Neurology Clinic, University Hospital Policlinico Vittorio Emanuele, via S. Sofia, 78, 95123 Catania, Italy. Electronic address: patti@unict.it.
¹⁴ Unit of Neuroepidemiology, Foundation IRCCS Neurological Institute C. Besta, via Celoria 11, 20133 Milan, Italy. Electronic address: alessandra.solari@istituto-besta.it.

PMID: 27288793
DOI: 10.1016/j.jns.2016.05.016

No abstract available

Keywords: Caregivers; Illness burden; Outcome measure; Palliative care; Primary progressive multiple sclerosis; Quality of life; Secondary progressive multiple sclerosis.

Publication types

Clinical Trial

MeSH terms

Adult
Aged
Aged, 80 and over
Caregivers / psychology*
Cost of Illness
Cross-Sectional Studies
Employment / psychology
Female
Humans
Linear Models
Male
Middle Aged
Multiple Sclerosis / therapy*
Multivariate Analysis
Palliative Care / methods
Perception
Psychiatric Status Rating Scales
Quality of Life / psychology*
Severity of Illness Index
Socioeconomic Factors
Surveys and Questionnaires
Young Adult