Promoting advance care planning among community-based older adults: A randomized controlled trial

Patient Educ Couns. 2016 Nov;99(11):1785-1795. doi: 10.1016/j.pec.2016.05.009. Epub 2016 May 12.

Abstract

Objective: To test an intervention designed to motivate older adults in documenting their healthcare preferences in advance, and to guide proxies in making hypothetical decisions that match those of the older adult.

Methods: The trial involved 235 older adults, of which half were assisted in communicating their wishes to their proxy. Hypothetical vignettes were used at baseline and twice after the intervention to elicit older adults' preferences and assess their proxy's ability to predict them.

Results: By the end of the trial, 80% of older adults allocated to the experimental group had documented their wishes. Changes over time in mean accuracy scores did not differ between groups for any hypothetical situations, except when limiting the sample to dyads that were highly discordant at baseline.

Conclusion: The intervention motivated a large proportion of older adults to express their preferences but had little effect on proxies' ability to predict them.

Practice implications: Educational tools developed for this study will assist healthcare providers in helping older adults to record their wishes in advance. Clients must be informed of the challenge of making substitute decisions and of the need to discuss the amount of leeway the proxy should have in interpreting expressed wishes.

Keywords: Accuracy; Advance directives; Clinical vignettes; Competence; Completion rate; Substitute decision-making.

Publication types

  • Randomized Controlled Trial
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Advance Care Planning*
  • Advance Directives*
  • Aged
  • Aged, 80 and over
  • Decision Making*
  • Female
  • Humans
  • Male
  • Patient Preference
  • Proxy*
  • Residence Characteristics