The Jackson Heart KIDS Pilot Study: Theory-Informed Recruitment in an African American Population

J Racial Ethn Health Disparities. 2017 Apr;4(2):288-296. doi: 10.1007/s40615-016-0228-x. Epub 2016 Apr 29.

Abstract

Recruitment for large cohort studies is typically challenging, particularly when the pool of potential participants is limited to the descendants of individuals enrolled in a larger, longitudinal "parent" study. The increasing complexity of family structures and dynamics can present challenges for recruitment in offspring. Few best practices exist to guide effective and efficient empirical approaches to participant recruitment. Social and behavioral theories can provide insight into social and cultural contexts influencing individual decision-making and facilitate the development strategies for effective diffusion and marketing of an offspring cohort study. The purpose of this study was to describe the theory-informed recruitment approaches employed by the Jackson Heart KIDS Pilot Study (JHKS), a prospective offspring feasibility study of 200 African American children and grandchildren of the Jackson Heart Study (JHS)-the largest prospective cohort study examining cardiovascular disease among African American adults. Participant recruitment in the JHKS was founded on concepts from three theoretical perspectives-the Diffusion of Innovation Theory, Strength of Weak Ties, and Marketing Theory. Tailored recruitment strategies grounded in participatory strategies allowed us to exceed enrollment goals for JHKS Pilot Study and develop a framework for a statewide study of African American adolescents.

Keywords: Adolescents; African Americans; Cohort studies; Diffusion of innovation; Population studies; Recruitment.

Publication types

  • Research Support, N.I.H., Extramural
  • Research Support, U.S. Gov't, P.H.S.

MeSH terms

  • Adolescent
  • Black or African American*
  • Cardiovascular Diseases / epidemiology*
  • Child
  • Cohort Studies
  • Diet*
  • Diffusion of Innovation
  • Exercise*
  • Feasibility Studies
  • Female
  • Humans
  • Longitudinal Studies
  • Male
  • Marketing
  • Patient Selection*
  • Pilot Projects
  • Prospective Studies
  • Risk Factors
  • Sleep*
  • Social Theory
  • Stress, Psychological / epidemiology*
  • United States / epidemiology