Definition of a COPD self-management intervention: International Expert Group consensus

Tanja W Effing; Jan H Vercoulen; Jean Bourbeau; Jaap Trappenburg; Anke Lenferink; Paul Cafarella; David Coultas; Paula Meek; Paul van der Valk; Erik W M A Bischoff; Christine Bucknall; Naresh A Dewan; Frances Early; Vincent Fan; Peter Frith; Daisy J A Janssen; Katy Mitchell; Mike Morgan; Linda Nici; Irem Patel; Haydn Walters; Kathryn L Rice; Sally Singh; Richard Zuwallack; Roberto Benzo; Roger Goldstein; Martyn R Partridge; Job van der Palen

doi:10.1183/13993003.00025-2016

Definition of a COPD self-management intervention: International Expert Group consensus

Eur Respir J. 2016 Jul;48(1):46-54. doi: 10.1183/13993003.00025-2016. Epub 2016 Apr 13.

Authors

Tanja W Effing¹, Jan H Vercoulen², Jean Bourbeau³, Jaap Trappenburg⁴, Anke Lenferink⁵, Paul Cafarella⁶, David Coultas⁷, Paula Meek⁸, Paul van der Valk⁵, Erik W M A Bischoff⁹, Christine Bucknall¹⁰, Naresh A Dewan¹¹, Frances Early¹², Vincent Fan¹³, Peter Frith⁶, Daisy J A Janssen¹⁴, Katy Mitchell¹⁵, Mike Morgan¹⁶, Linda Nici¹⁷, Irem Patel¹⁸, Haydn Walters¹⁹, Kathryn L Rice²⁰, Sally Singh¹⁵, Richard Zuwallack²¹, Roberto Benzo²², Roger Goldstein²³, Martyn R Partridge²⁴, Job van der Palen²⁵

Affiliations

¹ Dept of Respiratory Medicine, Southern Adelaide Local Health Network, Adelaide, Australia School of Medicine, Flinders University, Adelaide, Australia tanja.effing@health.sa.gov.au.
² Dept of Medical Psychology and Dept of Pulmonary Diseases, Radboud University Medical Center, Nijmegen, The Netherlands.
³ Respiratory Epidemiology and Clinical Research Unit, Research Institute of the McGill University Health Centre, McGill University, Montreal, QC, Canada.
⁴ Dept of Rehabilitation, Nursing Science & Sports, University Medical Center Utrecht, Utrecht, The Netherlands.
⁵ Dept of Pulmonary Medicine, Medisch Spectrum Twente, Enschede, The Netherlands.
⁶ Dept of Respiratory Medicine, Southern Adelaide Local Health Network, Adelaide, Australia School of Medicine, Flinders University, Adelaide, Australia.
⁷ VA Portland Health Care System and Dept of Medicine, Oregon Health & Science University, Portland, OR, USA.
⁸ University of Colorado College of Nursing, Aurora, CO, USA.
⁹ Dept of Primary and Community Care, Radboud University Medical Center, Nijmegen, The Netherlands.
¹⁰ Dept of Respiratory Medicine, Glasgow Royal Infirmary, Glasgow, UK.
¹¹ Division of Pulmonary Critical Care and Sleep Medicine, Creighton University and Omaha Veterans Affairs Medical Centre, Omaha, NE, USA.
¹² Centre for Self-Management Support, Cambridge University Hospitals NHS Foundation Trust, Addenbrooke's Hospital, Cambridge, UK.
¹³ VA Puget Sound Health Care System, Seattle, WA, USA Dept of Medicine, University of Washington, Seattle, WA, USA.
¹⁴ Dept of Research & Education, CIRO, Centre of Expertise for Chronic Organ Failure, Horn, The Netherlands.
¹⁵ Centre for Exercise and Rehabilitation Science, University Hospitals of Leicester, Leicester, UK.
¹⁶ Dept of Respiratory Medicine, Glenfield Hospital, University Hospitals of Leicester NHS Trust, Leicester, UK.
¹⁷ Dept of Pulmonary and Critical Care, Providence Veterans Administration Medical Center, Providence, RI, USA.
¹⁸ Dept of Respiratory Medicine, King's College Hospital NHS Trust, London, UK.
¹⁹ CRE for Chronic Respiratory Disease, School of Medicine, University of Tasmania, Hobart, Australia.
²⁰ Pulmonary Section, Dept of Medicine, VA Medical Center, Minneapolis, MN, USA Dept of Medicine, University of Minnesota, Minneapolis, MN, USA.
²¹ Dept of Pulmonary and Critical Care, St. Francis Hospital and Medical Center, Hartford, CT, USA.
²² Mindful Breathing Lab, Mayo Clinic, Rochester, MN, USA.
²³ West Park Healthcare, University of Toronto, Toronto, ON, Canada.
²⁴ National Heart and Lung Institute, Imperial College, London, UK.
²⁵ Dept of Pulmonary Medicine, Medisch Spectrum Twente, Enschede, The Netherlands Dept of Research Methodology, Measurement and Data Analysis, University of Twente, Enschede, The Netherlands.

PMID: 27076595
DOI: 10.1183/13993003.00025-2016

Abstract

There is an urgent need for consensus on what defines a chronic obstructive pulmonary disease (COPD) self-management intervention. We aimed to obtain consensus regarding the conceptual definition of a COPD self-management intervention by engaging an international panel of COPD self-management experts using Delphi technique features and an additional group meeting.In each consensus round the experts were asked to provide feedback on the proposed definition and to score their level of agreement (1=totally disagree; 5=totally agree). The information provided was used to modify the definition for the next consensus round. Thematic analysis was used for free text responses and descriptive statistics were used for agreement scores.In total, 28 experts participated. The consensus round response rate varied randomly over the five rounds (ranging from 48% (n=13) to 85% (n=23)), and mean definition agreement scores increased from 3.8 (round 1) to 4.8 (round 5) with an increasing percentage of experts allocating the highest score of 5 (round 1: 14% (n=3); round 5: 83% (n=19)).In this study we reached consensus regarding a conceptual definition of what should be a COPD self-management intervention, clarifying the requisites for such an intervention. Operationalisation of this conceptual definition in the near future will be an essential next step.

Publication types

Research Support, Non-U.S. Gov't

MeSH terms

Adult
Consensus
Delphi Technique
Female
Humans
International Cooperation
Male
Middle Aged
Pulmonary Disease, Chronic Obstructive / rehabilitation*
Self-Management / methods*

Grants and funding

K24 HL138150/HL/NHLBI NIH HHS/United States