Psychosocial burden and desire for support in outpatients with skin cancer

J Dtsch Dermatol Ges. 2016 Apr;14(4):405-15. doi: 10.1111/ddg.12767.
[Article in English, German]

Abstract

Background: An important basis for adequate psycho-oncological and psychosocial care of cancer patients is the regular assessment of their psychosocial distress and thus their need for care. For this purpose, there are numerous questionnaires available. The objective of the present study was to assess whether distressed patients require professional support and which screening instrument outpatients with skin cancer prefer.

Patients and methods: In a cross-sectional survey, we asked outpatients with skin cancer to fill out three questionnaires assessing psychosocial stress, and to indicate which one they considered most adequate. Patients were offered the following three instruments: Hornheide Questionnaire (27 items), Hornheide Screening Instrument (7 items), and the Distress Thermometer. In addition, we inquired about the patients' desire for support.

Results: (1) Comparing subjective distress and patients' declared desire for support revealed a marked divergence. While one-third of the 137 patients were identified as being in need of care, only 11.5% of the sample requested such support. (2) 63.7% of patients chose the long version of the Hornheide Questionnaire.

Conclusions: In addition to their psychosocial burden, patients' desire for support should be assessed. Moreover, apart from screening tools, other ways to provide access to psychosocial care should be considered.

Keywords: Distress Thermometer; Hornheide Questionnaire; Hornheide Screening Instrument; Screening instruments; desire for support; psychosocial burden; skin tumor patients.

MeSH terms

  • Adult
  • Aftercare / psychology
  • Age Distribution
  • Aged
  • Aged, 80 and over
  • Cost of Illness
  • Female
  • Germany / epidemiology
  • Health Surveys
  • Humans
  • Longitudinal Studies
  • Male
  • Middle Aged
  • Needs Assessment
  • Outpatients / psychology*
  • Outpatients / statistics & numerical data
  • Patient Preference / statistics & numerical data*
  • Psychology
  • Psychometrics / methods
  • Quality of Life / psychology
  • Sex Distribution
  • Skin Neoplasms / epidemiology
  • Skin Neoplasms / psychology*
  • Skin Neoplasms / therapy
  • Social Support*
  • Stress, Psychological / epidemiology
  • Stress, Psychological / psychology*
  • Stress, Psychological / therapy
  • Surveys and Questionnaires*
  • Young Adult