Bearing the right to healthcare, autonomy and hope

Soc Sci Med. 2015 Dec:147:163-9. doi: 10.1016/j.socscimed.2015.11.003. Epub 2015 Nov 10.

Abstract

In this article, I discuss the significance of understanding within the context of the campaign for affordable and accessible HIV/AIDS treatments in South Africa, the transformational effects of the interplay between political rationality and affect for HIV-positive subjectivities. The article focuses on the policy tactics, in 2001, of the lobbying for a policy to prevent mother-to-child-transmission of HIV. A close reading of the lobby groups' rationalization of healthcare as a fundamental human right reveals a strategic attempt to recast a sense of helplessness into self-responsibilization, which concurrently involved nourishing hope in the preferred future for women with HIV to be afforded the right to individual choice associated with self-determination. Therefore, the struggle for a policy to prevent mother-to-child-transmission of HIV - an exemplary initiative to reconstitute HIV-positive subjectivity - maneuvered within both rationalizing and emotive spaces. Ongoing engagement of the broader campaign's contribution to redefining being HIV-positive thus also necessitates accounting for the effects of the convergence of political rationality and emotion in its tactically emancipatory project.

Keywords: Affect; HIV-Positive subjectivity; HIV/AIDS treatments; Mother-to-Child-Transmission; Political rationality; South Africa.

Publication types

  • Historical Article

MeSH terms

  • Acquired Immunodeficiency Syndrome / prevention & control
  • Female
  • HIV Infections / prevention & control*
  • HIV Infections / therapy*
  • Health Care Costs / history
  • Health Policy / legislation & jurisprudence*
  • Health Services Accessibility*
  • History, 20th Century
  • Hope
  • Humans
  • Infectious Disease Transmission, Vertical / prevention & control
  • Lobbying
  • Pregnancy
  • South Africa