Measuring the impact of burn scarring on health-related quality of life: Development and preliminary content validation of the Brisbane Burn Scar Impact Profile (BBSIP) for children and adults

Zephanie Tyack; Jenny Ziviani; Roy Kimble; Anita Plaza; Amber Jones; Leila Cuttle; Megan Simons

doi:10.1016/j.burns.2015.05.021

Measuring the impact of burn scarring on health-related quality of life: Development and preliminary content validation of the Brisbane Burn Scar Impact Profile (BBSIP) for children and adults

Burns. 2015 Nov;41(7):1405-19. doi: 10.1016/j.burns.2015.05.021. Epub 2015 Oct 1.

Authors

Zephanie Tyack¹, Jenny Ziviani², Roy Kimble³, Anita Plaza⁴, Amber Jones⁵, Leila Cuttle⁶, Megan Simons⁷

Affiliations

¹ Centre for Children's Burns and Trauma Research, Child Health Research Centre, Level 4, Foundation Building, Royal Children's Hospital, Herston Rd, Herston, Brisbane, Queensland 4006, Australia; Central Queensland Hospital and Health Service, East St, Rockhampton, Queensland 4700, Australia. Electronic address: zephanie.tyack@gofarm.com.au.
² School of Health and Rehabilitation Sciences, The University of Queensland, St Lucia, Brisbane, Queensland 4067, Australia. Electronic address: j.ziviani@uq.edu.au.
³ Centre for Children's Burns and Trauma Research, Child Health Research Centre, Level 4, Foundation Building, Royal Children's Hospital, Herston Rd, Herston, Brisbane, Queensland 4006, Australia; Department of Paediatric Surgery, Urology, Neonatal Surgery, Burns and Trauma, Lady Cilento Children's Hospital, Brisbane, Queensland 4101, Australia; School of Medicine, The University of Queensland, St Lucia, Brisbane, Queensland 4067, Australia. Electronic address: royk@uq.edu.au.
⁴ Physiotherapy Department, Royal Brisbane and Women's Hospital, Butterfield St, Herston, Brisbane, Queensland 4006, Australia. Electronic address: Anita.Plaza@health.qld.gov.au.
⁵ Occupational Therapy Department, Royal Brisbane and Women's Hospital, Butterfield St, Herston, Brisbane, Queensland 4006, Australia. Electronic address: Amber.Jones@health.qld.gov.au.
⁶ Centre for Children's Burns and Trauma Research, Child Health Research Centre, Level 4, Foundation Building, Royal Children's Hospital, Herston Rd, Herston, Brisbane, Queensland 4006, Australia. Electronic address: leila.cuttle@qut.edu.au.
⁷ Centre for Children's Burns and Trauma Research, Child Health Research Centre, Level 4, Foundation Building, Royal Children's Hospital, Herston Rd, Herston, Brisbane, Queensland 4006, Australia; Department of Occupational Therapy, Lady Cilento Children's Hospital, 501 Stanley St, South Brisbane, Queensland 4101, Australia. Electronic address: Megan.Simons@health.qld.gov.au.

PMID: 26421693
DOI: 10.1016/j.burns.2015.05.021

Abstract

Introduction: No burn-scar specific, health-related quality of life (HRQOL) measure exists. This study aimed to develop a patient-reported, evaluative HRQOL measure to assess the impact of burn scarring in children and adults.

Method: Semi-structured interviews, content validation surveys, and cognitive interviews were used to develop and test content validity of a new measure - the Brisbane Burn Scar Impact Profile (BBSIP).

Results: Participants comprised Australian adults (n=23) and children (n=19) with burn scarring; caregivers of children with burn scarring (n=28); and international scar management experts (n=14). Items distinct from other burn scar measures emerged. Four versions of the BBSIP were developed; one for children aged 8-18 years, one for adults, one for caregivers (as proxies for children aged less than 8-years), and one for caregivers of children aged 8-18 years. Preliminary content validity of the BBSIP was supported. Final items covered physical and sensory symptoms; emotional reactions; impact on social functioning and daily activities; impact of treatment; and environmental factors.

Conclusion: The BBSIP was developed to assess burn-scar specific HRQOL and will be available at http://www.coolburns.com.au under a creative commons license. Further testing is underway.

Keywords: Burns; Cicatrix; Health and wellbeing; Hypertrophic; Outcome assessment; Patient reported outcomes; Quality of life.

Publication types

Research Support, Non-U.S. Gov't
Validation Study

MeSH terms

Adolescent
Adult
Aged
Burns / complications*
Burns / psychology
Caregivers / psychology
Child
Cicatrix / psychology*
Cross-Sectional Studies
Female
Health Status
Humans
Male
Middle Aged
Prospective Studies
Quality of Life*
Sickness Impact Profile*
Surveys and Questionnaires
Young Adult