[Social representations of illness among people with chronic kidney disease]

Rev Gaucha Enferm. 2015 Jun;36(2):106-12. doi: 10.1590/1983-1447.2015.02.48183.
[Article in Portuguese]

Abstract

Objective: To describe the social representations of illness among people with chronic kidney disease undergoing haemodialysis.

Method: Descriptive, qualitative research, anchored on the social representations theory. This study was conducted in the municipality of Ponta Grossa, Paraná State, Brazil, with 23 adults with chronic kidney disease. Data were collection between February and November 2012 by means of a semi-structured interview, and analyzed using Content Analysis.

Results: The interviews led to the categories "the meaning of kidney disease": awareness of finitude, and "survival": the visible with chronic kidney disease. The representation of illness unveiled a difference and interruption in life projects, and haemodialysis meant loss of freedom, imprisonment and stigma.

Conclusion: Family ties and the individuals´ social role are determining representations for healthcare.

Publication types

  • English Abstract

MeSH terms

  • Adult
  • Attitude to Death
  • Attitude to Health
  • Cost of Illness
  • Emotions
  • Female
  • Frustration
  • Humans
  • Interpersonal Relations
  • Male
  • Middle Aged
  • Personal Autonomy
  • Renal Dialysis / psychology*
  • Renal Insufficiency, Chronic / psychology*
  • Renal Insufficiency, Chronic / therapy
  • Self Concept*
  • Social Stigma
  • Socioeconomic Factors
  • Stress, Psychological