Illness Perception and Well-Being Among Persons with Multiple Sclerosis and Their Caregivers

J Clin Psychol Med Settings. 2016 Mar;23(1):33-52. doi: 10.1007/s10880-015-9425-8.

Abstract

This study jointly examined illness beliefs held by persons with multiple sclerosis (PwMS) and caregivers in relation to well-being. A group of 68 PwMS and their caregivers completed the Revised Illness Perception Questionnaire, Psychological Well-being Scales, Satisfaction with Life Scale and Positive Affect and Negative Affect Schedule. Findings revealed that PwMS' well-being was primarily predicted by their own illness beliefs, and that also caregivers' well-being was primarily predicted by their own beliefs. Across the two groups, well-being was positively associated with their belief that they understood the disease, and inversely associated with their representations of negative emotions. In addition, among PwMS, well-being was inversely associated with the number of symptoms they specifically attributed to their illness, while among caregivers, well-being was positively associated with beliefs that treatment could control the disease. Based on the study findings, psychoeducational and cognitive-behavioral strategies are suggested to promote well-being among PwMS and caregivers.

Keywords: Hedonic balance; Illness perceptions; Multiple sclerosis; Psychological well-being; Satisfaction with life.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Affect
  • Attitude to Health*
  • Caregivers / psychology*
  • Caregivers / statistics & numerical data
  • Female
  • Humans
  • Male
  • Middle Aged
  • Multiple Sclerosis / psychology*
  • Personal Satisfaction*
  • Quality of Life / psychology*
  • Severity of Illness Index
  • Surveys and Questionnaires