The Spirit of "Ubuntu" in Children's Palliative Care

J Pain Symptom Manage. 2015 Sep;50(3):424-7. doi: 10.1016/j.jpainsymman.2015.05.011. Epub 2015 Jul 10.

Abstract

The concept of "ubuntu," a Nguni word, is found in many southern African cultures and means that we are part of all humanity and we are who we are through our interconnectedness with others. Children with life-limiting conditions often become isolated and take on a new identity in the eyes of others, linked to their illness and treatment. Terms that are used can dehumanize the child. The concept of ubuntu can help the child, the family, and the community to ensure the child remains connected to society. Programs providing palliative care for children often say they feel isolated; ubuntu principles are relevant to effective network development.

Keywords: Ubuntu; children; connectedness; life limiting; palliative care; resilience.

Publication types

  • Case Reports

MeSH terms

  • Adolescent
  • Brain Neoplasms / psychology
  • Brain Neoplasms / therapy
  • Child
  • Death
  • Fatal Outcome
  • Female
  • Humans
  • Palliative Care / methods*
  • Pediatrics / methods*
  • South Africa
  • Terminology as Topic