Setting the stage: measure selection, coordination, and data collection for a national self-management initiative

Kristie P Kulinski; Michele Boutaugh; Matthew Lee Smith; Marcia G Ory; Kate Lorig

doi:10.3389/fpubh.2014.00206

Setting the stage: measure selection, coordination, and data collection for a national self-management initiative

Front Public Health. 2015 Apr 27:2:206. doi: 10.3389/fpubh.2014.00206. eCollection 2014.

Authors

Kristie P Kulinski¹, Michele Boutaugh², Matthew Lee Smith³, Marcia G Ory⁴, Kate Lorig⁵

Affiliations

¹ National Council on Aging , Washington, DC , USA.
² Administration on Aging, Administration for Community Living , Atlanta, GA , USA.
³ Department of Health Promotion and Behavior, College of Public Health, The University of Georgia , Athens, GA , USA.
⁴ Department of Health Promotion and Community Health Sciences, School of Public Health, Texas A&M Health Science Center , College Station, TX , USA.
⁵ Stanford Patient Education Research Center, Department of Medicine, Stanford School of Medicine , Palo Alto, CA , USA.

Abstract

This paper describes the history and rationale behind the development of a centralized data collection system for the national rollout of the Chronic Disease Self-Management Program (CDSMP) through the American Recovery and Reinvestment Act of 2009 Communities Putting Prevention to Work: CDSMP initiative. In addition to justifying the need for solutions to the burgeoning burden of chronic disease in the United States, this paper provides details about CDSMP and related self-management education programs, including their structure, facilitator training, and effectiveness. These topics set the stage for the processes and procedures to create and manage the database for use at the national, state, and local levels. Furthermore, this paper describes the processes related to selecting variables, coordinating data collection, and utilizing data to inform research and policy.

Keywords: chronic disease self-management; data collection; evidence-based program; intervention planning.

Publication types

Review