Quality of Life of Patients With Pyoderma Gangrenosum and Hidradenitis Suppurativa

Arielle J Gerard; Steven R Feldman; Lindsay Strowd

doi:10.1177/1203475415575013

Quality of Life of Patients With Pyoderma Gangrenosum and Hidradenitis Suppurativa

J Cutan Med Surg. 2015 Jul-Aug;19(4):391-6. doi: 10.1177/1203475415575013. Epub 2015 Mar 5.

Authors

Arielle J Gerard¹, Steven R Feldman², Lindsay Strowd³

Affiliations

¹ Center for Dermatology Research, Departments of Dermatology, Wake Forest School of Medicine, Winston-Salem, NC, USA.
² Center for Dermatology Research, Departments of Dermatology, Wake Forest School of Medicine, Winston-Salem, NC, USA Departments of Pathology, Wake Forest School of Medicine, Winston-Salem, NC, USA Departments of Public Health Sciences, Wake Forest School of Medicine, Winston-Salem, NC, USA sfeldman@wakehealth.edu.
³ Center for Dermatology Research, Departments of Dermatology, Wake Forest School of Medicine, Winston-Salem, NC, USA Clinical Associates, Baltimore, MD, USA.

PMID: 25775617
DOI: 10.1177/1203475415575013

Abstract

Background: Pyoderma gangrenosum (PG) and hidradenitis suppurativa (HS) are painful and unsightly dermatologic disorders that have the potential to significantly decrease patients' quality of life (QOL). Due to the difficulties associated with curing these conditions, QOL improvement is imperative.

Objective: To determine if there are PG and HS disease-specific QOL measures and to assess whether QOL is being systematically studied in clinic populations or clinical trials.

Methods: A PubMed search was performed to identify QOL studies for patients with PG and HS. Sources from other papers were also utilized.

Results: QOL is rarely qualitatively or quantitatively assessed in HS and PG studies. We identified no validated disease-specific QOL measures for either PG or HS.

Conclusion: Development of disease-specific QOL indices, clinical use of QOL measurement tool, and formal QOL evaluation in clinical trials would help to define the impact of PG and HS treatment in patients' lives.

Keywords: Verneuil disease; acne inversa; care quality; dermatology; inflammatory; psychophysical; psychosocial.

Publication types

Research Support, Non-U.S. Gov't
Review

MeSH terms

Hidradenitis Suppurativa / physiopathology*
Hidradenitis Suppurativa / psychology*
Humans
Psychometrics / methods
Pyoderma Gangrenosum / physiopathology*
Pyoderma Gangrenosum / psychology*
Quality of Life