The everyday ethics of field work research with vulnerable patients

Stud Health Technol Inform. 2014:205:813-7.

Abstract

Patients are increasingly involved in health informatics research. Researchers are always aware of the ethical dimensions of their research, but studies in the field with patients--especially among the frail, elderly, cognitively impaired--present specific additional 'everyday moral dilemmas'. Reflecting on experiences of a hospital study of patients with dementia, this paper draws attention on the type and constant presence of this situated ethics, the immediacy of decision-making, and the importance of everyday ethics for health informatics.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Biomedical Research / ethics*
  • Health Personnel / ethics*
  • Humans
  • Informed Consent / ethics*
  • Medical Informatics / ethics*
  • Patient Participation
  • Patient Safety*
  • Patient Selection / ethics*
  • United Kingdom
  • Vulnerable Populations*