Adding SUGAR: service user and carer collaboration in mental health nursing research

J Psychosoc Nurs Ment Health Serv. 2014 Jan;52(1):22-30. doi: 10.3928/02793695-20131126-04. Epub 2013 Dec 4.

Abstract

SUGAR (Service User and Carer Group Advising on Research) is an initiative established to develop collaborative working in mental health nursing research between mental health service users, carers, researchers, and practitioners at City University London, United Kingdom. This article will describe the background of SUGAR; how the group operates; some of the achievements to date, including researcher reflections; and case studies of how this collaboration influences our research. Written reflective narratives of service user and carer experiences of SUGAR were analyzed using constant comparative methods by the members. Common themes are presented with illustrative quotes. The article highlights the benefits and possible limitations identified to date by members of SUGAR, outlines future plans, and considers the findings in relation to literature on involvement and empowerment. This article, written by staff and members of SUGAR, is the first venture into collaborative writing of the group and reflects the shared ethos of collaborative working.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Caregivers*
  • Cooperative Behavior*
  • Female
  • Humans
  • Male
  • Mental Disorders / nursing*
  • Mental Health Services / organization & administration*
  • Middle Aged
  • Nursing Research
  • Nursing Staff, Hospital
  • Organizational Objectives
  • Patient Participation*
  • Peer Group
  • Power, Psychological
  • Program Evaluation
  • Psychiatric Nursing / organization & administration*
  • United Kingdom
  • Volunteers / organization & administration