Can I access my personal genome? The current legal position in the UK

Med Law Rev. 2014 Winter;22(1):64-86. doi: 10.1093/medlaw/fwt027. Epub 2013 Oct 17.

Abstract

This paper discusses the nature of genomic information, and the moral arguments in support of an individual's right to access it. It analyses the legal avenues an individual might take to access their sequence information. The authors describe the policy implications in this area and conclude that, for now, the law appears to strike an appropriate balance, but new policy will need to be developed to address this issue.

Keywords: DNA sequencing; bioethics; genetic research; genome; research ethics; research findings.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Databases, Genetic
  • Genetic Privacy / ethics
  • Genetic Privacy / legislation & jurisprudence*
  • Genetic Research / ethics
  • Genetic Research / legislation & jurisprudence*
  • Genetic Testing / ethics
  • Genetic Testing / legislation & jurisprudence*
  • Genome, Human
  • Humans
  • Patient Access to Records / ethics
  • Patient Access to Records / legislation & jurisprudence*
  • United Kingdom