Belgian general practitioners' perspectives on the use of palliative sedation in end-of-life home care: a qualitative study

J Pain Symptom Manage. 2014 Jun;47(6):1054-63. doi: 10.1016/j.jpainsymman.2013.06.016. Epub 2013 Oct 2.

Abstract

Context: Palliative sedation (PS) is a far-reaching palliative measure with a life-shortening potential. Guidelines provide only for a restricted use of PS and as a last resort.

Objectives: To explore PS practice in end-of-life (EoL) home care.

Methods: This was a qualitative analysis of semi-structured interviews with 52 general practitioners (GPs) of Flanders, Belgium.

Results: Apart from GPs who adhere to the existing prerequisites for PS, opinions diverge among GPs on the indication area for PS and on possible life-shortening intentions. The key to GPs' broadened view on "which suffering merits PS" is the fragile context of EoL home care, and the key to GPs' possible life-shortening intentions is their need to facilitate the dying process, when trying or lengthy. When honoring a terminally ill patient's request for euthanasia, several GPs prefer slow euthanasia using PS to a lethal injection.

Conclusion: PS home practice deviates from the PS guidelines' recommendations. In addition to the GPs' shortage of knowledge, the guidelines' recommendations do not always meet the particular needs of EoL home care. If one consideration of EoL home care is to respect a patient's wish to die at home, then the pre-emptive use of PS to avoid a futile transfer to the hospital in the case of an undesirable turn of events deserves more attention in the PS debate.

Keywords: General practitioner; continuous deep sedation; decision making; end-of-life care; home care; practice guideline; sedation; sedation to unconsciousness; terminal care.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Aged
  • Aged, 80 and over
  • Attitude of Health Personnel*
  • Belgium
  • Female
  • General Practitioners / psychology*
  • Home Care Services*
  • Humans
  • Hypnotics and Sedatives / therapeutic use*
  • Interviews as Topic
  • Male
  • Middle Aged
  • Palliative Care / methods*
  • Practice Guidelines as Topic
  • Qualitative Research
  • Terminal Care / methods*

Substances

  • Hypnotics and Sedatives