Information and support for co-survivors during or after cancer treatment: Consideration of Un Abrazo Para la Familia as a model for family-focused intervention in cancer rehabilitation

Work. 2013;46(4):395-405. doi: 10.3233/WOR-131675.

Abstract

Objective: The development and evaluation of Un Abrazo Para La Familia, [A Hug for the Family] is described. Un Abrazo is discussed as an effective model of education, information-sharing, and skill-building for use with low-income co-survivors of cancer.

Participants: Sixty co-survivors participated. The majority were women and all reported being Hispanic.

Methods: Using quantitative data (N=60), the needs, concerns, and characteristics of the co-survivor population served through Un Abrazo are presented. Further, we offer three qualitative case studies (with one co-survivor, one survivor, and one non-participant) to illustrate the model and its impact.

Results: The median level of education level of co-survivors was 12 years. The majority were unemployed and/or identified as homemakers, and indicated receipt of services indicating low-income status. Half reported not having health insurance. The top four cancer-related needs or concerns were: Information, Concern for another person, Cost/health insurance, and Fears.

Conclusions: Recognizing the centrality of the family in addressing cancer allows for a wider view of the disease and the needs that arise during and after treatment. Key rehabilitation strategies appropriate for intervening with co-survivors of cancer include assessing and building upon strengths and abilities and making culturally-respectful cancer-related information and support accessible.

Keywords: Low-income; education; psychosocial; qualitative evaluation.

Publication types

  • Clinical Trial
  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adaptation, Psychological
  • Adolescent
  • Adult
  • Family / psychology*
  • Fear
  • Fees and Charges
  • Female
  • Hispanic or Latino* / education
  • Hispanic or Latino* / psychology
  • Humans
  • Information Dissemination*
  • Insurance, Health
  • Male
  • Needs Assessment
  • Neoplasms / economics
  • Neoplasms / psychology*
  • Neoplasms / rehabilitation
  • Poverty
  • Social Support
  • Survivors
  • Young Adult