What bereavement follow-up does family members request in Japanese palliative care units? A qualitative study

Abstract

Background: There is no standardized method by which bereavement care is offered by hospice/palliative care units (PCUs) in Japan.

Aim: To evaluate bereavement services provided by hospice/PCUs and clarify demands for bereavement care.

Design: Qualitative design based on semistructured interviews and content analysis.

Setting/participants: Forty-four bereaved family members of patients with cancer who died in 9 PCUs in 4 regions.

Results: Memorial services were positively evaluated for the following variables: reunion and interaction with staff; the service's relaxed atmosphere; staff attentiveness; suitable location; suitable timing; program content; and interaction with other bereaved families. Memorial cards were positively evaluated regarding the level of concern shown by the staff and the personalized card. Respondents indicated their desire for a care system, a bereaved family care program, and information services.

Keywords: Japan; bereaved families; bereavement; memorial service; palliative care; qualitative research.