Home enteral nutrition in children: a 14-year multicenter survey

Eur J Clin Nutr. 2013 Jan;67(1):53-7. doi: 10.1038/ejcn.2012.184. Epub 2012 Nov 28.

Abstract

Background/objectives: The practice of home enteral nutrition (HEN) represents a relevant aspect of the clinical management of both malnourished children and well-nourished children unable to be fed using an oral diet. The aim of this study was to estimate in an Italian paediatric population over a 14-year period (1996-2009), the clinical relevance and results over time of HEN activity.

Subjects/methods: HEN-computerized database and medical/dietetic charts were evaluated for patients aged at start of HEN <18 years and HEN duration >1 month.

Results: During the study period, we recorded 757 HEN programs. HEN began at a median age of 2 years for a median duration of 8.1 months. The complication rate was 14.8%. In the second period of the survey (2003-2009), the main changes concerned the underlying diseases requiring HEN, choice of formula feeding and access route. In 2009, the estimated overall prevalence of HEN was 3.47 and the incidence 2.45 per 100 000 inhabitants from 0 to 18 years of age.

Conclusions: The epidemiological data of this study demonstrate that HEN concerns a growing number of Italian children and families. Some aspects of HEN clinical management should be modified to reach the recommended standards.

Publication types

  • Multicenter Study

MeSH terms

  • Adolescent
  • Child
  • Child, Preschool
  • Electronic Health Records
  • Enteral Nutrition* / adverse effects
  • Enteral Nutrition* / instrumentation
  • Female
  • Gastrostomy / adverse effects
  • Health Care Surveys
  • Home Care Services*
  • Humans
  • Infant
  • Intubation, Gastrointestinal / adverse effects
  • Italy
  • Male
  • Medical Records
  • Nervous System Diseases / congenital
  • Nervous System Diseases / physiopathology
  • Practice Guidelines as Topic
  • Retrospective Studies
  • Spatio-Temporal Analysis
  • Time Factors