Rare cancers in children - The EXPeRT Initiative: a report from the European Cooperative Study Group on Pediatric Rare Tumors

G Bisogno; A Ferrari; E Bien; I B Brecht; B Brennan; G Cecchetto; J Godzinski; D Orbach; Y Reguerre; T Stachowicz-Stencel; D T Schneider

doi:10.1055/s-0032-1327608

Rare cancers in children - The EXPeRT Initiative: a report from the European Cooperative Study Group on Pediatric Rare Tumors

Klin Padiatr. 2012 Oct;224(6):416-20. doi: 10.1055/s-0032-1327608. Epub 2012 Nov 9.

Authors

G Bisogno¹, A Ferrari, E Bien, I B Brecht, B Brennan, G Cecchetto, J Godzinski, D Orbach, Y Reguerre, T Stachowicz-Stencel, D T Schneider

Affiliation

¹ Clinic of Pediatric Oncology, University of Padova, Padova, Italy.

PMID: 23143769
DOI: 10.1055/s-0032-1327608

Abstract

The low incidence and the heterogeneity of very rare tumors (VRTs) demand for international cooperation. In 2008, EXPeRT (European Cooperative Study Group for Pediatric Rare Tumors) was founded by national groups from Italy, France, United Kingdom, Poland and Germany. The first aims of EXPeRT were to agree on a uniform definition of VRTs and to develop the currently most relevant scientific questions. Current initiatives include international data exchange, retrospective and prospective studies of specific entities, and the development of harmonized and internationally recognized guidelines. Moreover, EXPeRT established a network for expert consultation to assist in clinical decision in VRTs.

Publication types

Research Support, Non-U.S. Gov't

MeSH terms

Adolescent
Biomedical Research
Cancer Care Facilities
Child
Child, Preschool
Clinical Trials as Topic
Cohort Studies
Cooperative Behavior
Europe
Humans
Infant
Interdisciplinary Communication
International Cooperation*
Neoplasms / diagnosis*
Neoplasms / therapy*
Rare Diseases*
Registries