Working with immigrant families raising a child with a disability: challenges and recommendations for healthcare and community service providers

Disabil Rehabil. 2012;34(23):2007-17. doi: 10.3109/09638288.2012.667192. Epub 2012 Mar 29.

Abstract

Purpose: Although providing culturally sensitive care is an important element of family-centered rehabilitation very is little known about providers' experiences working with immigrant families in pediatric settings. The purpose of this study is to develop a better understanding of the experiences of service providers working with immigrant families raising a child with a physical disability.

Method: We draw on a qualitative approach involving in-depth interviews and focus groups with healthcare and community service providers (n = 13) in two multi-cultural Canadian cities.

Results: The findings indicate that healthcare and community service providers encounter several challenges in providing care to immigrant families raising a child with a disability. Such challenges include the following: (1) lack of training in providing culturally sensitive care; (2) language and communication issues; (3) discrepancies in conceptualizations of disability between healthcare providers and immigrant parents; (4) building rapport; and (5) helping parents to advocate for themselves and their children. Service providers also have several recommendations for improving services to better meet the needs of immigrant families.

Conclusion: Clinicians should be cognizant of how culture influences the care they provide to clients. More training opportunities are needed for enhancing culturally sensitive care.

Implications for rehabilitation: • Pediatric rehabilitation providers working with immigrant families raising a child with a disability should engage in training and education around culturally sensitive care to better meet the needs of these clients. • More time is needed when working with immigrant families to build trust and rapport. • Clinicians need to be sensitive around gender issues and try to involve both parents in the decision making around the care for their child. • Healthcare providers should help clients to become more aware of the resources available to them in the hospital and in the community.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Canada
  • Child
  • Child Health Services / organization & administration*
  • Communication
  • Cultural Competency
  • Culture
  • Delivery of Health Care / organization & administration
  • Disabled Children*
  • Emigrants and Immigrants / psychology*
  • Family*
  • Female
  • Focus Groups
  • Health Personnel
  • Health Services Accessibility
  • Humans
  • Interviews as Topic
  • Male
  • Professional-Patient Relations*
  • Qualitative Research
  • Urban Population