On the verge: phenomenology and empathic unsettlement

J Am Folk. 2011;124(493):147-74. doi: 10.5406/jamerfolk.124.493.0147.

Abstract

Using a phenomenological approach to questions about empathy and stigma, this essay explores stories told by parents of children with disabilities. In a close reading of "Welcome to Holland," an allegorical account of discovering that one's child has Down syndrome, I explore the concepts of narrative alignment (and positionality) and the politics of recognition in narratives about disability. In addition, this autoethnographic account describes my own "empathic unsettlement" as a parent and as an ethnographer.

Publication types

  • Historical Article

MeSH terms

  • Anthropology, Cultural / education
  • Anthropology, Cultural / history
  • Child
  • Child, Preschool
  • Disabled Children* / education
  • Disabled Children* / history
  • Disabled Children* / psychology
  • Down Syndrome* / ethnology
  • Down Syndrome* / history
  • Empathy*
  • History, 20th Century
  • History, 21st Century
  • Humans
  • Learning*
  • Social Stigma*