Informed consent and patient registry for the rare disease community: Editorial
Contemp Clin Trials
.
2012 Jan;33(1):3-4.
doi: 10.1016/j.cct.2011.10.005.
Epub 2011 Oct 22.
Authors
Christine Grady
,
Yaffa R Rubinstein
,
Stephen C Groft
PMID:
22036667
PMCID:
PMC4825809
DOI:
10.1016/j.cct.2011.10.005
No abstract available
Publication types
Editorial
MeSH terms
Guideline Adherence*
Humans
Informed Consent / standards*
Patient Advocacy*
Rare Diseases*
Registries / standards*
Grants and funding
Z99 CL999999/ImNIH/Intramural NIH HHS/United States