Informed consent and patient registry for the rare disease community: Editorial

Contemp Clin Trials. 2012 Jan;33(1):3-4. doi: 10.1016/j.cct.2011.10.005. Epub 2011 Oct 22.
No abstract available

Publication types

  • Editorial

MeSH terms

  • Guideline Adherence*
  • Humans
  • Informed Consent / standards*
  • Patient Advocacy*
  • Rare Diseases*
  • Registries / standards*