Self management pilot study on women with breast cancer: lessons learnt in Malaysia

Asian Pac J Cancer Prev. 2010;11(5):1293-9.

Abstract

Objective: With increasing survival rates, breast cancer is now considered a chronic condition necessitating innovative care to meet the long-term needs of survivors. This paper presents the findings of a pilot study on self-management for women diagnosed with breast cancer and their implications for Asian health care providers.

Methods: A pre-test/ post-test pilot study was conducted to gain preliminary insights into program feasibility and barriers to participation, and to provide justification for a larger trial.

Results: The study found the 4 week self-management program feasible and acceptable, with a favourable trend in quality of life. The recruitment barriers ranged from competing medical appointments, uncollaborative health providers, linguistic barriers and social-household concerns. Supporting facilitators identified were family, health professionals and fellow participants ("buddies"). Lessons from the study are discussed with regard to Asian health providers.

Conclusion: There is preliminary evidence that self management is a workable and potentially useful model even in an Asians entrenched-hierarchical medical model of care. The initial challenge was breaking down barriers in acceptancee of a collaborative stance. A clinical trial is now warranted to gather more evidence.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Attitude of Health Personnel
  • Breast Neoplasms / drug therapy*
  • Breast Neoplasms / therapy*
  • Disease-Free Survival
  • Female
  • Health Knowledge, Attitudes, Practice
  • Humans
  • Malaysia
  • Middle Aged
  • Neoplasm Staging
  • Patient Education as Topic
  • Pilot Projects
  • Quality of Life
  • Self Care*
  • Surveys and Questionnaires