Parent report and direct observation of injection-related coping behaviors in youth with type 1 diabetes

J Pediatr Psychol. 2011 Apr;36(3):318-28. doi: 10.1093/jpepsy/jsq082. Epub 2010 Sep 17.

Abstract

Objective: This study evaluated insulin injection coping by parental report and video observation in children 3 to <11 years old with diabetes.

Methods: Caregivers of 61 youth with type 1 diabetes completed the Diabetes Injection Distress-Parent Report Form (DID-PRF); a subsample (n = 19; 30%) submitted video recordings of their children's insulin injections.

Results: The DID-PRF demonstrated acceptable internal consistency and moderately correlated with video recordings. Half of parents (n = 31; 51%) reported their child's history of insulin injection distress; 30% reportedly experienced distress ≥1 year after diagnosis. Current distress was reported for about half (n = 28) of children. More parent and child coping/distress behaviors was associated with younger child age. Children displayed more injection distress in their first month after diagnosis versus the most recent month.

Conclusions: Diabetes-related injection distress and associated coping behaviors should be further explored; longitudinal data and additional measurement development is warranted.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adaptation, Psychological*
  • Child
  • Child, Preschool
  • Diabetes Mellitus, Type 1 / psychology*
  • Diabetes Mellitus, Type 1 / therapy
  • Female
  • Health Behavior*
  • Humans
  • Insulin / therapeutic use
  • Male
  • Parent-Child Relations*
  • Parents*
  • Stress, Psychological / psychology*
  • Video Recording

Substances

  • Insulin