Decision-making and risk-assessment in living liver donation: how informed is the informed consent of donors? A qualitative study

Psychosomatics. 2010 Jul-Aug;51(4):312-9. doi: 10.1176/appi.psy.51.4.312.

Abstract

Background: The practice of living donor liver transplantation (LDLT) has been increasing over the past 20 years. In LDLT, a healthy individual offers a substantial part of his or her liver (up to 60%) for the benefit of a terminally-ill recipient.

Objective: The aim of the study was to identify decision-making and risk-assessment patterns of living liver donors and assess whether the principles of informed consent and decision autonomy are being met.

Method: The authors conducted semistructured clinical interviews with 28 donors before transplantation.

Results: The authors found that a decision was being reached before a decision-making process could take place. Surgery risks were perceived and processed in different ways, including the factors of risk-awareness, denial, limited acceptance, and fatalism.

Discussion: The authors assess concepts of informed consent and decision autonomy in LDLT, and offer suggestions for donor selection.

MeSH terms

  • Adult
  • Aged
  • Decision Making*
  • Emotions
  • Female
  • Health Knowledge, Attitudes, Practice
  • Humans
  • Informed Consent / psychology*
  • Interview, Psychological / methods
  • Liver Transplantation / psychology*
  • Living Donors / psychology*
  • Male
  • Middle Aged
  • Risk Assessment