Developing a contemporary functional outcome measure for spinal cord injury research

Spinal Cord. 2010 Mar;48(3):262-7. doi: 10.1038/sc.2009.131. Epub 2009 Oct 20.

Abstract

Study design: This study used qualitative analysis of focus group discussions.

Objective: The primary objective was to select functional activities to include in an item pool, which is the first step in developing a spinal cord injury computer adaptive test (SCI-CAT).

Setting: This multisite study was conducted at six US National Spinal Cord Injury Model Systems Programs.

Methods: Focus group discussions, which included persons with tetraplegia and paraplegia and clinicians, were conducted. Transcripts were analyzed using a grounded theory approach. Functional activities were identified, binned, winnowed, written as functional items, and cognitively tested.

Results: Focus group discussion analysis identified 326 functional activity items that fit into categories outlined in the International Classification of Functioning, Disability and Health (ICF) framework: Mobility (193 items), including assessment of functioning in a manual (44 items) and power wheelchair (19 items); self-care (109 items); and communication (19 items). Items related to sexual function were also identified (5 items).

Conclusion: The SCI-CAT item pool includes items that assess functional activities important to persons with SCI. Items cover a wide range of functional ability and reflect most ICF categories. The SCI-CAT pool is currently being field tested to develop a calibrated item bank. Further development will yield a CAT of functional activities appropriate for SCI research.

Publication types

  • Multicenter Study
  • Research Support, U.S. Gov't, Non-P.H.S.

MeSH terms

  • Activities of Daily Living
  • Adult
  • Cost of Illness
  • Crutches
  • Disability Evaluation
  • Female
  • Humans
  • Male
  • Middle Aged
  • Mobility Limitation
  • Motor Skills
  • Movement / physiology
  • Paraplegia / diagnosis
  • Paraplegia / rehabilitation
  • Quadriplegia / diagnosis
  • Quadriplegia / rehabilitation
  • Recovery of Function / physiology*
  • Reference Standards
  • Self Care
  • Sexual Dysfunction, Physiological / epidemiology
  • Spinal Cord Injuries / complications
  • Spinal Cord Injuries / diagnosis*
  • Spinal Cord Injuries / rehabilitation*
  • Treatment Outcome
  • Walkers
  • Walking / physiology
  • Wheelchairs