End-of-life care for older adults with dementia living in group homes in Japan

Jpn J Nurs Sci. 2008 Jun;5(1):31-40. doi: 10.1111/j.1742-7924.2008.00097.x.

Abstract

Aim: The aim of this study was to elucidate the components of end-of-life care provided to older adults with dementia who live in group homes (GHs) in Japan.

Introduction: The number of GHs in Japan is rapidly increasing. Although GHs were originally not established to care for elderly people with advanced-stage dementia, many residents remain in the GH even after their stage of dementia advances; thus, end-of-life care is required.

Methods: Interviews were conducted with seven GH administrators on their experience in providing end-of-life care to their residents. The constant comparative approach was used for data collection and analysis.

Findings: Four themes emerged as essential components of end-of-life care in the GH setting: (i) maintaining a familiar lifestyle; (ii) minimizing physical and mental discomfort; (iii) proactively utilizing desirable medical care; and (iv) collaborating with family members.

Conclusion: The combination of the four components seems to be a unique characteristic of end-of-life care in GHs in Japan. These findings may be used to establish a framework for end-of-life care at GHs.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Aged
  • Dementia / nursing*
  • Family
  • Group Homes / standards*
  • Homes for the Aged
  • Humans
  • Japan
  • Life Style
  • Professional-Patient Relations
  • Terminal Care / standards*