Racial differences in patient expectations prior to resective epilepsy surgery

Epilepsy Behav. 2009 Aug;15(4):452-5. doi: 10.1016/j.yebeh.2009.05.010. Epub 2009 Jun 21.

Abstract

We assessed the nature and frequency of preoperative expectations among patients with refractory epilepsy who were enrolled in a seven-center observational study of epilepsy surgery outcomes. At enrollment, patients responded to open-ended questions about expectations for surgical outcome. With the use of an iterative cutting-and-sorting technique, expectation themes were identified and rank-ordered. Associations of expectations with race/ethnicity were evaluated. Among 391 respondents, the two most frequently endorsed expectations (any rank order) were driving (62%) and job/school (43%). When only the most important (first-ranked) expectation was analyzed, driving (53%) and cognition (17%) were most frequently offered. Nonwhites endorsed job/school and cognition more frequently and driving less frequently than whites (all P0.05), whether expectations of any order or only first-ranked expectations were included. Elucidating the reason for these differences can aid in the clinical decision-making process for resective surgery and potentially address disparities in its utilization.

Publication types

  • Multicenter Study
  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Activities of Daily Living
  • Adult
  • Automobile Driving
  • Cognition / physiology
  • Cohort Studies
  • Data Interpretation, Statistical
  • Employment
  • Epilepsy / epidemiology*
  • Epilepsy / surgery*
  • Ethnicity
  • Female
  • Humans
  • Male
  • Neurosurgical Procedures / psychology*
  • Neurosurgical Procedures / statistics & numerical data*
  • Quality of Life
  • Schools
  • Socioeconomic Factors
  • Treatment Outcome
  • United States
  • Young Adult