Randomized controlled trial of SPIRIT: an effective approach to preparing African-American dialysis patients and families for end of life

Res Nurs Health. 2009 Jun;32(3):260-73. doi: 10.1002/nur.20320.

Abstract

This randomized controlled trial tested an intervention, Sharing Patients' Illness Representations to Increase Trust (SPIRIT), designed to enhance communication regarding end-of-life care between African Americans with end-stage renal disease (ESRD) and their chosen surrogate decision makers (N = 58 dyads). We used surveys and semi-structured interviews to determine the feasibility, acceptability, and preliminary effects of SPIRIT on patient and surrogate outcomes at 1 week and 3 months post-intervention. We also evaluated patients' deaths and surrogates' end-of-life decision making to assess surrogates' perceptions of benefits and limitations of the SPIRIT while facing end-of-life decisions. We found that SPIRIT promoted communication between patients and their surrogates and was effective and well received by the participants.

Publication types

  • Randomized Controlled Trial
  • Research Support, N.I.H., Extramural

MeSH terms

  • Advance Care Planning / organization & administration*
  • Aged
  • Attitude to Health / ethnology
  • Black or African American* / education
  • Black or African American* / ethnology
  • Communication*
  • Conflict, Psychological
  • Decision Making
  • Family / ethnology
  • Feasibility Studies
  • Female
  • Follow-Up Studies
  • Humans
  • Kidney Failure, Chronic / ethnology*
  • Kidney Failure, Chronic / therapy
  • Male
  • Middle Aged
  • Nursing Assessment
  • Nursing Evaluation Research
  • Nursing Methodology Research
  • Patient Education as Topic / organization & administration*
  • Proxy / psychology*
  • Qualitative Research
  • Self Efficacy
  • Surveys and Questionnaires
  • Terminal Care / psychology
  • Trust