Evaluation of group genetic counseling for hereditary breast and ovarian cancer

J Genet Couns. 2009 Feb;18(1):87-100. doi: 10.1007/s10897-008-9189-5. Epub 2009 Jan 6.

Abstract

As demand for genetic counseling regarding hereditary cancer continues to grow, more efficient methods of providing this service must be explored. In this pilot study, group genetic counseling was offered to two different cohorts of women seeking genetic counseling for Hereditary Breast and Ovarian Cancer. Seven group sessions, designed to cover all aspects of an individual genetic counseling appointment, were conducted. Although patients were receptive to group genetic counseling, a significant proportion chose individual counseling when given the option. Advantages of group genetic counseling include shared experience and increased efficiency. Disadvantages include increased frustration at not being eligible for genetic testing, group influence on decision-making, privacy concerns, increased need for follow-up, and difficulty booking group appointments. Overall, the level of patient satisfaction with group genetic counseling was similar to that of individual counseling. The results of this pilot study suggest that further research is needed to determine whether group genetic counseling is an acceptable alternative to individual counseling.

Publication types

  • Evaluation Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Breast Neoplasms / genetics*
  • Female
  • Genetic Counseling / standards*
  • Genetic Predisposition to Disease
  • Group Processes*
  • Humans
  • Outcome Assessment, Health Care
  • Ovarian Neoplasms / genetics*
  • Patient Satisfaction