Perspectives of survivors of traumatic brain injury and their caregivers on long-term social integration

Brain Inj. 2008 Jul;22(7-8):535-43. doi: 10.1080/02699050802158243.

Abstract

Background: Traumatic brain injury (TBI) has damaging impacts on victims and family members' lives and their long-term social integration constitutes a major challenge.

Purpose: The objective of the study was to document the repercussions of TBI on victims' long-term social integration (10 years post-trauma) and the contribution made by the services received from the point of view of TBI victims and family caregivers. This article examines the determinants of long-term social integration as well as the impact of TBI on family caregivers.

Methods: A qualitative design was used (semi-directed interviews). The sample consisted of 22 individuals who had sustained a moderate or severe TBI and 21 family caregivers.

Results: The results show that TBI is an experience that continues to present difficulties, even 10 years after the accident, and that different barriers contribute to this difficulty: not going back to work, depressive episodes, problems in relationships and sequellae. Family caregivers must help TBI victims confront the barriers in their path.

Implications: This study adopts a longitudinal perspective to help professionals determine how to intervene with TBI victims and their families. It validates the importance of having clients and family caregivers describe their reality.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adaptation, Psychological*
  • Adult
  • Aged
  • Brain Injuries / complications
  • Brain Injuries / psychology*
  • Brain Injuries / rehabilitation
  • Caregivers / psychology*
  • Family / psychology
  • Female
  • Humans
  • Longitudinal Studies
  • Male
  • Mental Disorders / psychology
  • Middle Aged
  • Social Adjustment*
  • Social Support
  • Surveys and Questionnaires
  • Survivors / psychology*