The perceptions of Taiwanese families who have children with learning disability

J Clin Nurs. 2007 Dec;16(12):2349-56. doi: 10.1111/j.1365-2702.2007.02013.x.

Abstract

Aims and objectives: To explore the perceptions of families in Taiwan of living with a child who have learning disability and the parents perspectives on the cultural influences on their spiritual experiences.

Background: Traditionally, the family is the most important unit of society, family functioning is a key field of interest among helping professionals who provide family interventions.

Design: This study adopted qualitative research with semi-structured interviews. The study analysis used content analysis which was a process of identifying, coding and categorizing the themes in the data.

Methods: Semi-structured interviews were conducted with 117 parents in their homes and were interpreted by using content analysis to extract key conceptual themes from the transcribed interview texts.

Results: The findings revealed that the perceptions of families with learning disability children were wide-ranging. The stressors did not occur in a fixed order, they were different in degree and importance from one family to another.

Conclusions: The results showed that the experience of analysing qualitative data was extremely valuable for parents in that it aided their own understanding of the real-life experiences of the parents and in coming to know the parents in a richer, more meaningful way. In doing so, nurses need to be aware of their own thoughts and environment without letting it influence others.

Relevance to clinical practice: The nurse should demonstrate knowledge and understanding of the family's culture and be able to show respect for cultural difference to assess and identify culturally acceptable health-care interventions.

MeSH terms

  • Adaptation, Psychological*
  • Adult
  • Attitude to Health / ethnology*
  • Child
  • Confucianism
  • Disabled Children / psychology
  • Family Health / ethnology
  • Female
  • Grief
  • Health Services Needs and Demand
  • Humans
  • Learning Disabilities / ethnology*
  • Learning Disabilities / prevention & control
  • Male
  • Medicine, Chinese Traditional
  • Nurse's Role
  • Nursing Methodology Research
  • Parents / education
  • Parents / psychology*
  • Professional-Family Relations
  • Qualitative Research
  • Self Care / methods
  • Self Care / psychology
  • Social Isolation
  • Social Support
  • Spirituality
  • Stress, Psychological / ethnology
  • Stress, Psychological / prevention & control
  • Surveys and Questionnaires
  • Taiwan