Experiences with an interoperable data acquisition platform for multi-centric research networks based on HL7 CDA

A Klein; T Ganslandt; L Brinkmann; M Spitzer; F Ueckert; H U Prokosch

Experiences with an interoperable data acquisition platform for multi-centric research networks based on HL7 CDA

AMIA Annu Symp Proc. 2006:2006:986.

Authors

A Klein¹, T Ganslandt, L Brinkmann, M Spitzer, F Ueckert, H U Prokosch

Affiliation

¹ Department of Medical Informatics, University Erlangen-Nuremburg, Germany.

PMID: 17238605
PMCID: PMC1839685

Abstract

A remote data entry (RDE) module was successfully integrated within a Web-based telemedicine system in a German multi-centric research network for a rare disease called Epidermolysis Bullosa. The use of standards like XML and HL7 CDA (Clinical Document Architecture) for structured data storage, guarantees long-term accessibility and high level interoperability.

Publication types

Research Support, Non-U.S. Gov't

MeSH terms

Biomedical Research / organization & administration*
Computer Communication Networks / standards
Data Collection
Epidermolysis Bullosa
Humans
Internet
Medical Record Linkage* / standards
Rare Diseases*
Systems Integration
Telemedicine