Storybook-based communication intervention for girls with Rett syndrome and their mothers

Disabil Rehabil. 2001;23(3-4):149-59. doi: 10.1080/09638280150504225.

Abstract

Purpose: Storybook reading provides a natural language learning context in which to support early symbolic communication. In this study, we explored the impact of (1) resting hand splints, (2) light tech augmentative communication systems such as voice-output devices and symbols, and (3) very basic parent training on the symbolic communication and labelling behaviours of six girls with Rett syndrome.

Method: Mothers and daughters were videotaped as they read familiar and unfamiliar storybooks in their homes.

Results: Group and individual data collected from the six girls indicated that they became more active and successful participants in the interactions during storybook reading. The girls employed a wider range of communication modes and increased the frequency of their labelling. Familiar storybook reading encouraged greater symbolic communication than unfamiliar storybooks in half the girls.

Conclusion: This study suggests that motivated parents may not require expensive technologies or lengthy training in order to enhance their children's early communication and participation in storybook reading.

Publication types

  • Clinical Trial
  • Controlled Clinical Trial
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Bibliotherapy / instrumentation
  • Bibliotherapy / methods*
  • Bibliotherapy / standards
  • Child
  • Child, Preschool
  • Communication*
  • Disabled Persons / psychology
  • Female
  • Hand / pathology
  • Humans
  • Mother-Child Relations*
  • Mothers / education*
  • Mothers / psychology*
  • Occupational Therapy / methods
  • Rett Syndrome / pathology
  • Rett Syndrome / psychology*
  • Rett Syndrome / therapy*
  • Splints
  • Treatment Outcome
  • Videotape Recording