No abstract available
MeSH terms
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Adaptation, Psychological
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Adult
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Attitude to Health*
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Child
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Cost of Illness
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Family / psychology
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Female
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Focus Groups
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Genetic Diseases, Inborn / nursing*
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Genetic Diseases, Inborn / psychology*
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Genetics, Medical / organization & administration*
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Holistic Health
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Humans
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Male
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Needs Assessment*
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Pastoral Care
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Quality of Life
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Social Support