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End points for sickle cell disease clinical trials: patient-reported outcomes, pain, and the brain.
Farrell AT, Panepinto J, Carroll CP, Darbari DS, Desai AA, King AA, Adams RJ, Barber TD, Brandow AM, DeBaun MR, Donahue MJ, Gupta K, Hankins JS, Kameka M, Kirkham FJ, Luksenburg H, Miller S, Oneal PA, Rees DC, Setse R, Sheehan VA, Strouse J, Stucky CL, Werner EM, Wood JC, Zempsky WT. Farrell AT, et al. Blood Adv. 2019 Dec 10;3(23):3982-4001. doi: 10.1182/bloodadvances.2019000882. Blood Adv. 2019. PMID: 31809538 Free PMC article.
Characterizing User Engagement With a Digital Intervention for Pain Self-management Among Youth With Sickle Cell Disease and Their Caregivers: Subanalysis of a Randomized Controlled Trial.
Lalloo C, Nishat F, Zempsky W, Bakshi N, Badawy S, Ko YJ, Dampier C, Stinson J, Palermo TM. Lalloo C, et al. Among authors: zempsky w. J Med Internet Res. 2022 Aug 30;24(8):e40096. doi: 10.2196/40096. J Med Internet Res. 2022. PMID: 36040789 Free PMC article. Clinical Trial.
Age of first pain crisis and associated complications in the CASiRe international sickle cell disease cohort.
Tartaglione I, Strunk C, Antwi-Boasiako C, Andemariam B, Colombatti R, Asare EV, Piccone CM, Manwani D, Boruchov D, Tavernier F, Farooq F, Akatue S, Oteng B, Urbonya R, Wilson S, Owda A, Bamfo R, Boatemaa GD, Rao S, Zempsky W, Sey F, Inusa BP, Perrotta S, Segbefia C, Campbell AD. Tartaglione I, et al. Among authors: zempsky w. Blood Cells Mol Dis. 2021 May;88:102531. doi: 10.1016/j.bcmd.2020.102531. Epub 2021 Jan 2. Blood Cells Mol Dis. 2021. PMID: 33401140
102 results