Wheeler AC - Search Results

1

Misunderstood terms and concepts identified through user testing of educational materials for fragile X premutation: "Not weak or fragile?".

Lincoln-Boyea B, Moultrie RR, Biesecker BB, Underwood M, Duparc M, Wheeler AC, Peay HL. Lincoln-Boyea B, et al. Among authors: wheeler ac. J Genet Couns. 2024 Apr;33(2):341-351. doi: 10.1002/jgc4.1725. Epub 2023 May 26. J Genet Couns. 2024. PMID: 37232511

2

Family Communication and Cascade Testing for Fragile X Syndrome.

Raspa M, Edwards A, Wheeler AC, Bishop E, Bailey DB Jr. Raspa M, et al. Among authors: wheeler ac. J Genet Couns. 2016 Oct;25(5):1075-84. doi: 10.1007/s10897-016-9940-2. Epub 2016 Mar 9. J Genet Couns. 2016. PMID: 26961978

3

A Digital Decision Support Tool to Enhance Decisional Capacity for Clinical Trial Consent: Design and Development.

Furberg RD, Ortiz AM, Moultrie RR, Raspa M, Wheeler AC, McCormack LA, Bailey DB Jr. Furberg RD, et al. Among authors: wheeler ac. JMIR Res Protoc. 2018 Jun 6;7(6):e10525. doi: 10.2196/10525. JMIR Res Protoc. 2018. PMID: 29875084 Free PMC article.

4

Mobile technology use and skills among individuals with fragile X syndrome: implications for healthcare decision making.

Raspa M, Fitzgerald T, Furberg RD, Wylie A, Moultrie R, DeRamus M, Wheeler AC, McCormack L. Raspa M, et al. Among authors: wheeler ac. J Intellect Disabil Res. 2018 Oct;62(10):821-832. doi: 10.1111/jir.12537. Epub 2018 Aug 13. J Intellect Disabil Res. 2018. PMID: 30105880 Free PMC article.

5

Fragile X syndrome clinical trials: exploring parental decision-making.

D'Amanda CS, Peay HL, Wheeler AC, Turbitt E, Biesecker BB. D'Amanda CS, et al. Among authors: wheeler ac. J Intellect Disabil Res. 2019 Aug;63(8):926-935. doi: 10.1111/jir.12605. Epub 2019 Feb 12. J Intellect Disabil Res. 2019. PMID: 30747463 Free PMC article.

6

Early Check: translational science at the intersection of public health and newborn screening.

Bailey DB Jr, Gehtland LM, Lewis MA, Peay H, Raspa M, Shone SM, Taylor JL, Wheeler AC, Cotten M, King NMP, Powell CM, Biesecker B, Bishop CE, Boyea BL, Duparc M, Harper BA, Kemper AR, Lee SN, Moultrie R, Okoniewski KC, Paquin RS, Pettit D, Porter KA, Zimmerman SJ. Bailey DB Jr, et al. Among authors: wheeler ac. BMC Pediatr. 2019 Jul 17;19(1):238. doi: 10.1186/s12887-019-1606-4. BMC Pediatr. 2019. PMID: 31315600 Free PMC article.

7

Supporting informed clinical trial decisions: Results from a randomized controlled trial evaluating a digital decision support tool for those with intellectual disability.

McCormack LA, Wylie A, Moultrie R, Furberg RD, Wheeler AC, Treiman K, Bailey DB Jr, Raspa M. McCormack LA, et al. Among authors: wheeler ac. PLoS One. 2019 Oct 23;14(10):e0223801. doi: 10.1371/journal.pone.0223801. eCollection 2019. PLoS One. 2019. PMID: 31644588 Free PMC article.

8

"Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health record.

Andrews SM, Raspa M, Edwards A, Moultrie R, Turner-Brown L, Wagner L, Alvarez Rivas A, Frisch MK, Wheeler AC. Andrews SM, et al. Among authors: wheeler ac. J Am Med Inform Assoc. 2020 Mar 1;27(3):429-436. doi: 10.1093/jamia/ocz208. J Am Med Inform Assoc. 2020. PMID: 31913479 Free PMC article.

9

Preferences for the research use of electronic health records among young adults with fragile X syndrome or autism spectrum disorder.

Wagner L, Frisch M, Turner-Brown L, Andrews S, Edwards A, Moultrie R, Alvarez Rivas A, Wheeler A, Raspa M. Wagner L, et al. Disabil Health J. 2020 Oct;13(4):100927. doi: 10.1016/j.dhjo.2020.100927. Epub 2020 Apr 8. Disabil Health J. 2020. PMID: 32360031 Free PMC article.

10

Ethical, Legal, and Social Issues Related to the Inclusion of Individuals With Intellectual Disabilities in Electronic Health Record Research: Scoping Review.

Raspa M, Moultrie R, Wagner L, Edwards A, Andrews S, Frisch MK, Turner-Brown L, Wheeler A. Raspa M, et al. J Med Internet Res. 2020 May 21;22(5):e16734. doi: 10.2196/16734. J Med Internet Res. 2020. PMID: 32436848 Free PMC article. Review.

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