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European Reference Network for Rare Vascular Diseases (VASCERN): When and how to use intravenous bevacizumab in Hereditary Haemorrhagic Telangiectasia (HHT)?
Dupuis-Girod S, Shovlin CL, Kjeldsen AD, Mager HJ, Sabba C, Droege F, Fargeton AE, Fialla AD, Gandolfi S, Hermann R, Lenato GM, Manfredi G, Post MC, Rennie C, Suppressa P, Sure U; ePag group; Buscarini E. Dupuis-Girod S, et al. Among authors: sure u. Eur J Med Genet. 2022 Oct;65(10):104575. doi: 10.1016/j.ejmg.2022.104575. Epub 2022 Aug 5. Eur J Med Genet. 2022. PMID: 35940549 Free article.
Safety of direct oral anticoagulants in patients with hereditary hemorrhagic telangiectasia.
Shovlin CL, Millar CM, Droege F, Kjeldsen A, Manfredi G, Suppressa P, Ugolini S, Coote N, Fialla AD, Geisthoff U, Lenato GM, Mager HJ, Pagella F, Post MC, Sabbà C, Sure U, Torring PM, Dupuis-Girod S, Buscarini E; VASCERN-HHT. Shovlin CL, et al. Among authors: sure u. Orphanet J Rare Dis. 2019 Aug 28;14(1):210. doi: 10.1186/s13023-019-1179-1. Orphanet J Rare Dis. 2019. PMID: 31462308 Free PMC article.
European Reference Network for Rare Vascular Diseases (VASCERN) position statement on cerebral screening in adults and children with hereditary haemorrhagic telangiectasia (HHT).
Eker OF, Boccardi E, Sure U, Patel MC, Alicante S, Alsafi A, Coote N, Droege F, Dupuis O, Fialla AD, Jones B, Kariholu U, Kjeldsen AD, Lefroy D, Lenato GM, Mager HJ, Manfredi G, Nielsen TH, Pagella F, Post MC, Rennie C, Sabbà C, Suppressa P, Toerring PM, Ugolini S, Buscarini E, Dupuis-Girod S, Shovlin CL. Eker OF, et al. Among authors: sure u. Orphanet J Rare Dis. 2020 Jun 29;15(1):165. doi: 10.1186/s13023-020-01386-9. Orphanet J Rare Dis. 2020. PMID: 32600364 Free PMC article.
[Implementation and development of a center for hereditary hemorrhagic telangiectasia].
Droege F, Dingemann J, Thangavelu K, Kuerten CHL, Dahlfrancis PM, Kaiser C, Kaster F, Zioga E, Meyer C, Lueb C, Sure U, Lang S, Geisthoff U. Droege F, et al. Among authors: sure u. Laryngorhinootologie. 2021 May;100(5):372-381. doi: 10.1055/a-1402-0543. Epub 2021 Mar 15. Laryngorhinootologie. 2021. PMID: 33723832 German.
The European Rare Disease Network for HHT Frameworks for management of hereditary haemorrhagic telangiectasia in general and speciality care.
Shovlin CL, Buscarini E, Sabbà C, Mager HJ, Kjeldsen AD, Pagella F, Sure U, Ugolini S, Torring PM, Suppressa P, Rennie C, Post MC, Patel MC, Nielsen TH, Manfredi G, Lenato GM, Lefroy D, Kariholu U, Jones B, Fialla AD, Eker OF, Dupuis O, Droege F, Coote N, Boccardi E, Alsafi A, Alicante S, Dupuis-Girod S. Shovlin CL, et al. Among authors: sure u. Eur J Med Genet. 2022 Jan;65(1):104370. doi: 10.1016/j.ejmg.2021.104370. Epub 2021 Nov 1. Eur J Med Genet. 2022. PMID: 34737116 Free article.
The management of arteriovenous malformations.
Sandalcioglu IE, Wanke I, Zappala V, Forsting M, Sure U. Sandalcioglu IE, et al. Among authors: sure u. J Neurosurg Sci. 2011 Mar;55(1):57-69. J Neurosurg Sci. 2011. PMID: 21464810 Review.
426 results