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The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation.
Waddington C, Harding E, Brotherhood EV, Davies Abbott I, Barker S, Camic PM, Ezeofor V, Gardner H, Grillo A, Hardy C, Hoare Z, McKee-Jackson R, Moore K, O'Hara T, Roberts J, Rossi-Harries S, Suarez-Gonzalez A, Sullivan MP, Edwards RT, Van Der Byl Williams M, Walton J, Willoughby A, Windle G, Winrow E, Wood O, Zimmermann N, Crutch SJ, Stott J. Waddington C, et al. Among authors: sullivan mp. JMIR Res Protoc. 2022 Jul 20;11(7):e35376. doi: 10.2196/35376. JMIR Res Protoc. 2022. PMID: 35857375 Free PMC article.
Protocol for the Rare Dementia Support Impact study: RDS Impact.
Brotherhood EV, Stott J, Windle G, Barker S, Culley S, Harding E, Camic PM, Caufield M, Ezeofor V, Hoare Z, McKee-Jackson R, Roberts J, Sharp R, Suarez-Gonzalez A, Sullivan MP, Tudor Edwards R, Walton J, Waddington C, Winrow E, Crutch SJ. Brotherhood EV, et al. Among authors: sullivan mp. Int J Geriatr Psychiatry. 2020 Aug;35(8):833-841. doi: 10.1002/gps.5253. Epub 2020 Feb 17. Int J Geriatr Psychiatry. 2020. PMID: 31876030 Clinical Trial.
Peer support for people living with rare or young onset dementia: An integrative review.
Sullivan MP, Williams V, Grillo A, McKee-Jackson R, Camic PM, Windle G, Stott J, Brotherhood E, Crutch SJ; Rare Dementia Support (RDS) research team. Sullivan MP, et al. Dementia (London). 2022 Nov;21(8):2700-2726. doi: 10.1177/14713012221126368. Epub 2022 Sep 16. Dementia (London). 2022. PMID: 36114712 Free PMC article. Review.
'The oxygen of shared experience': exploring social support processes within peer support groups for carers of people with non-memory-led and inherited dementias.
Harding E, Rossi-Harries S, Alterkawi S, Waddington C, Grillo A, Wood O, Brotherhood EV, Windle G, Sullivan MP, Camic PM, Stott J, Crutch SJ. Harding E, et al. Among authors: sullivan mp. Aging Ment Health. 2023 Sep-Oct;27(10):1912-1928. doi: 10.1080/13607863.2023.2194848. Epub 2023 Mar 31. Aging Ment Health. 2023. PMID: 36999880
'I have never bounced back': resilience and living with dementia.
Windle G, Roberts J, MacLeod C, Algar-Skaife K, Sullivan MP, Brotherhood E, Jones CH, Stott J. Windle G, et al. Among authors: sullivan mp. Aging Ment Health. 2023 Nov-Dec;27(12):2355-2367. doi: 10.1080/13607863.2023.2196248. Epub 2023 Apr 5. Aging Ment Health. 2023. PMID: 37020427
268 results