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Health-related quality of life in people with predementia Alzheimer's disease, mild cognitive impairment or dementia measured with preference-based instruments: a systematic literature review.
Landeiro F, Mughal S, Walsh K, Nye E, Morton J, Williams H, Ghinai I, Castro Y, Leal J, Roberts N, Wace H, Handels R, Lecomte P, Gustavsson A, Roncancio-Diaz E, Belger M, Jhuti GS, Bouvy JC, Potashman MH, Tockhorn-Heidenreich A, Gray AM; ROADMAP consortium. Landeiro F, et al. Alzheimers Res Ther. 2020 Nov 18;12(1):154. doi: 10.1186/s13195-020-00723-1. Alzheimers Res Ther. 2020. PMID: 33208190 Free PMC article. Review.
Challenges for Optimizing Real-World Evidence in Alzheimer's Disease: The ROADMAP Project.
Gallacher J, de Reydet de Vulpillieres F, Amzal B, Angehrn Z, Bexelius C, Bintener C, Bouvy JC, Campo L, Diaz C, Georges J, Gray A, Hottgenroth A, Jonsson P, Mittelstadt B, Potashman MH, Reed C, Sudlow C, Thompson R, Tockhorn-Heidenreich A, Turner A, van der Lei J, Visser PJ; ROADMAP Consortium. Gallacher J, et al. J Alzheimers Dis. 2019;67(2):495-501. doi: 10.3233/JAD-180370. J Alzheimers Dis. 2019. PMID: 30584137 Free PMC article.
Obtaining EQ-5D-5L utilities from the disease specific quality of life Alzheimer's disease scale: development and results from a mapping study.
Rombach I, Iftikhar M, Jhuti GS, Gustavsson A, Lecomte P, Belger M, Handels R, Castro Sanchez AY, Kors J, Hopper L, Olde Rikkert M, Selbæk G, Stephan A, Sikkes SAM, Woods B, Gonçalves-Pereira M, Zanetti O, Ramakers IHGB, Verhey FRJ, Gallacher J, Actifcare Consortium, LeARN Consortium, Landeiro F, Gray AM; ROADMAP Consortium. Rombach I, et al. Qual Life Res. 2021 Mar;30(3):867-879. doi: 10.1007/s11136-020-02670-8. Epub 2020 Oct 17. Qual Life Res. 2021. PMID: 33068236 Free PMC article.
What outcomes are important to patients with mild cognitive impairment or Alzheimer's disease, their caregivers, and health-care professionals? A systematic review.
Tochel C, Smith M, Baldwin H, Gustavsson A, Ly A, Bexelius C, Nelson M, Bintener C, Fantoni E, Garre-Olmo J, Janssen O, Jindra C, Jørgensen IF, McKeown A, Öztürk B, Ponjoan A, Potashman MH, Reed C, Roncancio-Diaz E, Vos S, Sudlow C; ROADMAP consortium. Tochel C, et al. Alzheimers Dement (Amst). 2019 Mar 7;11:231-247. doi: 10.1016/j.dadm.2018.12.003. eCollection 2019 Dec. Alzheimers Dement (Amst). 2019. PMID: 30906845 Free PMC article.