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Sickle Cell Disease Genomics of Africa (SickleGenAfrica) Network: ethical framework and initial qualitative findings from community engagement in Ghana, Nigeria and Tanzania.
Anie KA, Olayemi E, Paintsil V, Owusu-Dabo E, Adeyemo TA, Sani MU, Galadanci NA, Nnodu O, Tluway F, Adjei DN, Mensah P, Sarfo-Antwi J, Nwokobia H, Gambo A, Benjamin A, Salim A, Osae-Larbi JA, Ofori-Acquah SF; SickleGenAfrica Network. Anie KA, et al. BMJ Open. 2021 Jul 23;11(7):e048208. doi: 10.1136/bmjopen-2020-048208. BMJ Open. 2021. PMID: 34301659 Free PMC article.
Challenges and Outcomes of the First Stem Cell Transplant Program in Tanzania, East Africa.
Rwezaula S, Yonazi M, Panchal A, Dhoot A, Mathew J, Tony S, Rao S, Muhoka P, Mahfudh S, Budodi N, Kasubi M, Ndobho F, Kakumbula H, Luhulla K, Kapesa L, Tungaraza H, Nyagabona S, Shayo A, Seleki F, Mtenga J, Mwamtemi K, Suko M, Mbughi I, Shirima M, Mkisi A, Ally R, Kyaruzi M, Arola Myaka E, Matiku J, Nyamwaira M, Nair S, Asokan A, Kumar G, Badavath R, Swai H, Museru L, Ajaikumar BS, Beda D, Jadhav S. Rwezaula S, et al. Among authors: ndobho f. Adv Hematol. 2024 Mar 16;2024:1937419. doi: 10.1155/2024/1937419. eCollection 2024. Adv Hematol. 2024. PMID: 38524403 Free PMC article.
Development of multi-level standards of care recommendations for sickle cell disease: Experience from SickleInAfrica.
Paintsil V, Ally M, Isa H, Anie KA, Mgaya J, Nkanyemka M, Nembaware V, Oppong-Mensah YG, Ndobho F, Chirande L, Makubi A, Nnodu O, Wonkam A, Makani J, Ohene-Frempong K. Paintsil V, et al. Among authors: ndobho f. Front Genet. 2023 Jan 12;13:1052179. doi: 10.3389/fgene.2022.1052179. eCollection 2022. Front Genet. 2023. PMID: 36712852 Free PMC article.